Showing posts with label Friends For Life. Show all posts
Showing posts with label Friends For Life. Show all posts

Wednesday, July 9, 2014

Suddenly, Bloggers.

The diabetes community is to hotel bars as Corgis are to the internet?




It may be a while before my brain unscrambles enough to write about FFL, so you'll have to put up with me posting the three photos I took at the conference in the meantime.

Monday, July 7, 2014

Unpacking.

"I will help you, Mom. Let's unpack the rattles glucose tabs first."




The Friends For Life conference was great, but I really really really missed my kid.
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Monday, June 23, 2014

MasterLab / #CWDFFL14.

Next week is going to be one big blur of diabetes advocacy and emotions (and being without my kid for a whole week) (cue more emotions) so please leave a message kthanks BEEP.

By way of a scholarship* (immense gratitude as I wouldn't be able to attend either of these events without a scholarship's help), I'll be at the Diabetes Advocates MasterLab event and then the Children With Diabetes Friends For Life conference in Orlando, FL. And then because I really love a three-pronged challenge we will also be exhibiting the You Can Do This Project during FFL's exhibit hall hours.

MasterLab is on Wednesday. The exhibit hall also opens on Wednesday. Stress; I haz it.




Luckily I have some great friends and advisory team members who are more than willing to make this all work out. (Are we sure that beaker in the MasterLab logo isn't actually some sort of cocktail, because a few of us may be looking for one after trying to balance all of this.)

I'm really looking forward to the MasterLab as a way to figure how to move some things forward, and also because I'll get to meet so many of my favorite fellow advocates in-person, finally. There's a special magic that happens when we get a bunch of us into the same physical space.

In relation to exhibiting You Can Do This Project, I want to say a BIG THANK YOU (imagine me waving my arms around in an exaggerated fashion while saying that) to two organizations that helped me pay for the stuff we'll be giving away at the booth:
Like so

Thank you to Asante Solutions, makers of the Snap insulin pump, for paying for 1,500 You Can Do This Project bracelets to be given out to FFL attendees. You may recall that I did a four-week trial of their insulin pump last December. They'll be at this conference and offering free trials with their insulin pump there, too.

Thanks also go to Akibah Health for covering the costs of printing flyers and magnets (we're going to have magnets!!!) to hand out. They are developing a smartphone case all-in-one glucose meter, and will also be at FFL.

These are incredibly generous gestures, considering YCDTP is not a registered non-profit (we're a grassroots thing that dreams of being an official non-profit some day) and the only way you'd know they covered the bill for these is that I'm telling you right now. No co-branded anything. No signs of recognition at the booth. Just this blog mention/disclosure and my eternal gratitude to them for stepping up in a "we'll help where you need it and then just kind of back away and let you guys do your thing" kind of way.

Hell yeah.

It's also worth mentioning that CWD very generously "upgraded" us to a booth space (instead of the table location we started out with), so we'll be sprawling out in our 10x10 area, maxin' and relaxin' and actin' all cool. Thank you thank you thank you, Jeff and Laura.

It will be a crazy week that I'm crazy thankful to be having. Let the packing procrastination commence!

*The scholarship from DA covers the cost of my flights to and from the conference, the shuttle between the airport and hotel, conference registration, and the hotel room that Sar-Bear and I will be sharing (scholarship recipients were required to room together, as part of the whole deal - I'm used to that, anyway!). FFL just wouldn't be the same if Sara and I weren't sharing a room!





Tuesday, August 21, 2012

I Need That.


I know, I know... I said I was done talking about FFL. (I guess I never am?)

As I was cleaning out the photos stored on my phone last night, I found this gem that I had forgotten to share. It was a cheat sheet that each member of the staff at breakfast had stowed away in their clipboard so they'd know (by color of our bracelets) what our needs might be.

I want this for real life. What's the color bracelet that signifies, "Needs caffeine, less sass, and a decongestant that won't alter Dexcom results"?

Friday, August 17, 2012

You Can Do This: Joe Solo.

Last year was the first time I became aware of a guy named Joe Solo. (Actually his full last name is Solowiejczyk - much like my own name, it's often mispronounced.) My introduction came during the Friends For Life conference last year, and as it was my first time there, the whole thing was new to me. I didn't know that CWD gave out awards each year. I also didn't know why the room of 3,000 or so people suddenly rose to their feet during the banquet dinner one night, generating loud applause peppered with "Wooo!"s and whistles.

"Who is this? I don't even... but everyone else is clapping. Okay." And up I stood, clapping along with them, for this stranger on stage. It was later mentioned that he had marked 50 years with type 1 diabetes earlier that year, so okay, that's pretty cool, but still - I was perplexed. Why were my friends so in love with this guy?

Then I attended what I believe was called "Diabetes Burnout" - a session Joe led. Literally within the first minute of his opening remarks, it hit me. Oh. This guy. This guy speaks my language - including the bad words! I love this guy! And I got it. It happened again this year; I chose a session that ended up not being what I expected it to be, and taking the suggestion that was presented to us on day one of "if you're in a session and you don't dig it, it's okay to get up and leave and find one that suits you", a few friends and I headed to Joe's session. Within the first ten seconds of entering the room, I felt as though I had found "home".

It's not enough to tell you that he "gets it". I'm not sure it's enough to tell you that he might be one of my favorite PWDs to listen to; that the wisdom he drops will blow your mind, if you haven't heard it before; that he is what I think the epitome of the spirit behind You Can Do This is. He's not perfect, and he realizes that. He celebrates that. And you know what? If Joe can survive type 1 diabetes for 50+ years with the attitude and personality he continues to have - there's a lot of hope for the rest of us.


Friday, July 27, 2012

Friends For Life: The Outtakes.

I think this is my last FFL post. Really. I'll shut up about it now.

Along with the bonding, learning, and misty eyes, we also had a lot of laughter. A lot of silly. A lot of video that we couldn't really use.

Unless you make a blooper reel, that is.


Tuesday, July 24, 2012

Friends For Life: Jerry The Bear.

Several times during my stay at the Marriott World Center for Friends For Life I walked down a hallway that was lined with hi-top tables and chairs. For three days in a row, one particular table was commandeered by a swarm of laptops, cables, teddy bears, and a few 20-somethings working quite feverishly on... something. Their fingers fervently tapped at keyboards; their gaze barely lifted from their arsenal of... well, I wasn't quite sure what it was, but it seemed intense.

When the exhibit hall finally opened on Friday, my question was answered: it was Jerry the Bear (whom I keep wanting to call "Jerry the Beary"). And when I saw that the booth attendant was shamelessly sporting a bear costume? Sold.



As it turns out, that wasn't just a booth attendant: it was none other than Hannah Chung, co-founder of Design for America and Sproutel, the company that makes Jerry the Bear (which she invented alongside Aaron Horowitz - who has mad dance skills, apparently). She was kind enough to talk to me a bit more over email and Skype post-conference about this little furry guy they're working on.

"The inspiration for Jerry the Bear came from two places: a personal attachment to diabetes (type 2 diabetes can be found in many branches of Hannah's family tree; most closely with her father who was diagnosed at the age of 40), and a passion for designing interactive products for people living with chronic illnesses". (It's also worth noting that Jerry the Bear was originally conceived as part of the 2009 Diabetes Mine Design Challenge!)

So what is Jerry the Bear? He's an interactive teddy bear that allows kids to become the caretaker for someone (or some bear?) with type 1 diabetes - kids can "feed" Jerry with fabric discs that symbolize specific foods (and hear him say "nom nom nom" as he eats them - SO CUTE), check his paw for a blood sugar reading, and "inject" him with insulin, via a special pen, on one of his designated sites. Not only that, but Jerry is programmed to physically respond to these actions in a manner similar to how the human body would - give him food, his "blood sugar" goes up. Give him insulin; it goes down.

He's intended for young children as a teaching tool to help them adjust to their new lifestyle with type 1 diabetes - not just the physical things like shots and carb counts, and the self-awareness and diligence it takes. The stuffed animal format seems a good choice to me - teddy bears are an approachable and familiar concept for children.

Well, actually, even for adults.

And then the bear was all, "Heeeeeeeey"

It's this knowledge that led Hannah and Aaron to develop Jerry as a teddy bear, specifically. Kids carry around teddy bears anyway, and there was a need for something both educational AND interactive to help children adjust to life with type 1 - why not combine the two? The testing they've done so far (some of which took place at FFL) has produced very positive feedback: "We know that learning happens very rapidly in small children, and we're finding out that young kids have a longer engagement period (minutes vs. seconds) when there is an adult involved in playing with the bear, too. Parental involvement plays a huge role in having a great experience with Jerry."

So, those intense three days of table-hoarding... as it turns out, the Sproutel team received so much feedback at FFL that they could see immediate improvements to make to their product, which prompted a "hack-a-thon". During those three days of programming, they ended up increasing Jerry's code capacity by a third. (Whoa.)


They're still in the testing phase, but it sounds as though Jerry the Bear is scheduled to launch sometime in the middle of 2013. (Which seems like FOREVER to wait, right?) If you'd like pre-order a Jerry the Bear, head over to their website: www.jerrythebear.com. Want more info? Give them a jingle at info@jerrythebear.com. You can also check out the Jerry the Bear Facebook page and Twitter feed.

So how do I feel about this new way to help kids feel "okay" about this whole diabetes thing? You could say I'm bear-y excited.

::rimshot::

Friday, July 20, 2012

Wish You Were There.

For those who wanted to attend, but couldn't.

For those who did attend, and want to relive a bit of it.

For those who have no idea what all of these acronyms (CWD, FFL, YCDT, OMG) are about.

Thank you.



P.S. I set up a seperate Twitter account this morning, too - go follow @YCDTProject!

Thursday, July 19, 2012

Talking With Tony.

Tony Rose was kind enough to invite me on his podcast this week, and in case you'd like to hear me babble on about about things like diabetes camps, celebrating diaversaries, feeling angry about diabetes, Friends For Life and the You Can Do This Project (because I obviously haven't talked about those last two things enough), I have a link for you: http://bloggingdiabetes.com/2012/07/bdp-049-interview-with-kim-vlasnik-cgm-data-and-diabetes-news/

I also mention fanny packs. You've been warned.


Monday, July 16, 2012

Friends For Life: Trialing The Tandem t:slim.

It's been said by someone much more clever than I that Friends For Life is like Comic-Con for diabetes. (I've never been to Comic-Con, but from what I can gather, it seems to be a fair comparison.) For at least five days out of your year, you can feel "normal": everyone checks their blood sugar; you can both fist bump and pump bump your friends; the whole diabetes experience (and all that goes with it) becomes typical, instead of unique. 

Part of what is also rad about Diabetes-Con Friends For Life is the exhibit hall area, and how many vendors are there with answers, free samples, and an ability to try things out before you have to make a commitment. This year, Tandem Diabetes had a large presence in the hall (and an atmosphere that felt decidedly less "medical device" and more upscale retail space) and offered attendees the ability to trial their new touchscreen t:slim pump for a 24-hour period during the conference, provided you called in ahead of time to reserve a spot.

I figured this was as good a time as any to give this gizmo a go. After an hour-long orientation/Q&A/me not being able to keep up with the rapid pace on Tuesday afternoon, I had a t:slim to play around with.

These + Dexcom receiver = SO MUCH HARDWARE.

A better side-by-side comparison.

I definitely didn't learn everything there is to know about owning, using, or otherwise experiencing a t:slim in that 24 hours: the pump was never actually connected to me, nor did I get to do a set/cartridge change or charge the battery. That said, I did get to scroll through whatever menus I wanted, set basal and insulin to carb ratios, administer "boluses" (I think the thing was just filled with water), stop and start insulin delivery, and test-run all sorts of other features.



Long story short? I like it. I like it a whole bunch. Once you get a hang of where everything is, you realize just how intuitively and intelligently it's laid out. I like that it can hold 300u versus the 200u my Ping can manage. I like that it has a safety mechanism that, should something go terribly, horribly wrong, prevents the pump from accidentally administering a large dose of unwanted insulin. (The most it could give "by accident" is .3u.) The top of the pump doesn't have that screw-on cap, and instead has tubing coming directly out of the pump - which then has a connector further down the line. (You know how sometimes if you're wearing a pump on your waistband and then sit down, that cap kind of digs into your side/stomach? This eliminates that.) Thoughtful!

The one issue I did have was with the touch screen - maybe it was just my fingers, or the Florida heat, or who knows what... but there were a few times where I had to touch the screen three to five times before it would register the contact. I mean, it eventually recognized my action, but it wasn't as responsive as I would have liked. And if that only happens every once in a while? Maybe that's a manageable amount of "ugh".

I'm not due for a new pump until the end of next year, and who knows what will come through the FDA by then to change my mind... but for now, the t:slim has me impressed.

Disclosure: There's actually no need for a disclosure. At no point in talking with the Tandem folks did I mention that I write a blog, or any of that... as far as they were concerned (I think?), I was just another adult PWD. And until I tag them on Twitter when I publish this post, they also don't know I'm writing a review. Bazinga!

Friday, July 13, 2012

Friends For Life: The Booth.

Bring the You Can Do This Project to Friends For Life is an experience that I will always, always remember. It's a collection of memories that will be locked up in my heart until the day it stops beating. (Overly dramatic? Maybe. But it's true.)

I'll never forget seeing the booth for the first time and thinking, "AAAAAH! That's... this is a thing! It is really happening!"

I'll be forever grateful for the handful of people who gave up their time and money (because really, they had to miss some of the sessions they paid for) to help me out with this. Brian, Chris, Dayle, Sara, Jess, and Courtney - these people are amazing, and were a huge part of why the booth was truly a success. They helped lug a bunch of heavy stuff around (okay, we might have used a bellboy for most of it... advantage of the hotel setting); they saw what needed to be done (or what I might want done) and jumped on it; they knew how to connect with people as individuals. They were kind, passionate, and focused. They brought me Dunkin' Donuts for breakfast on Friday. They ROCKED IT.


I'll never forget the hundreds of positive responses that went something like, "This is so needed. I'm glad you all are here", or "Can I take some of these flyers home with me?", or "Wait, this isn't a company? It's just you?", or "This is so awesome!".

A parent also asked me if I'd heard of something called It Gets Better. I smiled, said that I had, and took it as a very high compliment that she made that connection.

I'll never forget the man who pulled me aside to tell me that I had changed his life, because he had realized after reading and watching that he wasn't alone.

I'll never forget the woman whom Chris directed to me, and her story: she had found the project three weeks prior. Her family is the "go-to" when there is a newly diagnosed T1 child in the area - her family is the first resource they find. She had been sharing You Can Do This with her network, and she told me that it was already changing lives. She told me that what I - and we - are doing is making a huge impact for those families. She thanked me, and I was speechless.

(Care to place a wager on whether or not that made me tear up?)

I'll also never forget the teenage girl who walked past our booth, then slowed to a stop at the stickers. She shrieked, "Oh my god! These are awesome! Can I take a handful of these?", to which I responded, "Of course!". She then turned to her friend, eyes sparkling and enthusiasm radiating, and said: "You know what would be funny? To put these on the wall of a bathroom stall. Or on someone's forehead when they go on a date! Oh my god, that would be hilarious!"

Sigh.

But really? The whole experience of actually talking face-to-face with the very people who can benefit from the support these videos supply - parents, adults with T1, teens, kids - was unreal. It had an energy that was just - wow. Do you know what I'm talking about? The air just feels electric and tastes of possibility? Where you catch yourself grinning like a fool for no reason? Where the invisible puzzle pieces of life slide together just ever-so-perfectly for a few fleeting moments? Where you know they won't freeze in place, so you just soak it up while you can?

God, I loved that feeling. Loved.

And out of the whole thing, I have a lot of new videos to share - including the one below (big thank you to Sara for putting it together!). We brought two dry erase boards with us and asked people one of two questions: "What advice do you have for other people with diabetes?", and "What kinds of things CAN you do with diabetes?".

I think it turned out pretty spectacularly. What do you think? (And what would your answer have been? Snap a photo of YOUR advice, and share it on the You Can Do This Project Facebook page.)


Wednesday, July 11, 2012

Friends For Life: Just Talking.

Chris (of Just Talking podcast and A Consequence of Hypoglycemia fame) assumed the role of cat-herder a couple of times during FFL as he recorded two podcasts with a scattering of adults with T1 (and some of their spouses, too). You'll hear from folks like Lee Ann, Scott, Brian, Jacquie, Jess, Sara, Dayle, Martin, Karen, Simon, Courtney... the list goes on.

We talk about the sessions we were looking forward to, the You Can Do This Project booth (plans, and then the afterthoughts), how we met each other, pregnancy, and anything else that came up.

Head on over and take a listen!

The "before":
http://justtalkingpodcast.com/2012/07/03/friends-for-life-bakers-dozen/

The "after": http://justtalkingpodcast.com/2012/07/10/friends-for-life-aftermath/

And if you'd like to watch a small snippet of the conversation, here you go:

Tuesday, July 10, 2012

Friends For Life: Where The Magic Lies.

"I did the math - there are probably around 800 people with diabetes in this hotel. If they all test around eight times per day, and we're here the equivalent of five days... that means we generate 32,000 used test strips at the end of this conference. No wonder we're finding them all over the floor." - a father of a child with T1

If I told you that attending the Children With Diabetes Friends For Life conference in Orlando, FL meant that you'd be completely surrounded and engulfed by diabetes for a week (and that it might be one of the single best things you can experience as a person living with T1), would that give you the complete picture? I know it won't.

How can I recreate the feeling; the atmosphere for you? How do I adequately explain the wonder of walking not more than a few steps in the conference center without crossing paths with one of my favorite people, or making a new friend? Can I convey what all of the hugs and face time meant to my heart; my soul? What words can I use to show you how this gathering of our tribe makes us feel stronger, empowered, and more confident?

Showing off our new You Can Do This Project bracelets

The magic lies in the intangibles. The beauty lies in hundreds of small moments of serendipity.

It's in the feelings that ramped up to the exhibit hall opening on Friday - that moment when I felt that I was exactly where I was supposed to be, doing exactly what I was supposed to be doing, at exactly the right time.

photo credit: Scully

Friends For Life has this wondrous balance to it - it's the get-down-to-the-heart-of-things seriousness you need, but it also has the silly, no-one-tweet-this moments that keep you giggling for hours, days, and weeks afterward. You learn from attending sessions, but you also learn from simply being around other PWDs and their families. You can't help but want to check your blood sugar, inject, or wear your pump on the outside when you're in this atmosphere. You can't help but smile at the sea of green bracelets worn only by those living with T1. You can't help but feel, at least a little bit, like you've found your tribe.

You feel better because you are there.


You'll hear a chorus of beeps, and then a mass exodus of purse and pocket contents as everyone tries to figure out whose device it was that just alarmed. You'll see each and every food served with a carb count. You'll meet some of the most passionate and driven people in the diabetes community. You'll have the chance to hear from people who have done amazing things, given some of the very same circumstances you face.




The magic is in the moments; the atmosphere; the people.

Is it July 8th, 2013 yet?

Monday, July 9, 2012

Friends For Life: Back To Reality.

You know that thing were you just had a life-changing, sleep-deprived-but-totally-worth-it, soul-nurturing week with your "tribe" in Florida, and the shock of leaving your comfort bubble and returning to the non-diabetes world is jarring your system?

Yeah, that.


I have so much to tell you guys, but I need to get some real-world things done first. (Cue the sad trombone.)

But in a nutshell? FFL12 was an absolutely amazing experience, in every sense of that word.

Friday, June 29, 2012

Cleaning.

As I pack myself up to fly to Florida tomorrow, I'm also cleaning a few things out - like my inbox, and all of the pictures on my phone.

* A company called Orpyx (they sell sensor-based devices for both medical and athletic stuff, and are currently focusing on technologies involving DPN [diabetic peripheral neuropathy]). Complications are one of those topics that can totally shut down a conversation for us PWDs - who wants to talk about that kind of stuff, right? But the more we know, the more we can do - for ourselves and others. In that spirit, here's a flashy (but kind of long) animated infographic they put together on the topic of DPN and foot care.



* Glooko announced earlier this week that they've launched in the EU - read the press release here.

* Medtronic Diabetes has a couple new things up their sleeves: a Facebook app that will feature patients' milestones right along with Medtronic's product launches and updates. A synopsis:
The app allows customers to upload photos and stories about the important moments in their lives – whether its climbing a mountain, learning to cook or just spending time with family. The app captures the information as a life event and shares on that individual’s Facebook wall. In addition, it allows us to post that life event as a milestone on the Medtronic Diabetes timeline. So, essentially we’re crowdsourcing our Facebook timeline. We did this because we want our timeline to be filled with more than just the innovation milestones of new products – we also want it to include the milestones of the people who use our technology every day.
Also, on the MySentry front, coverage has expanded:
Wellmark of Iowa has established coverage for mySentry for individuals who are currently using insulin pump therapy and CGM and are still experiencing glucose fluctuations or nocturnal hypoglycemia. We also just found out from our reimbursement team that BlueCross BlueShield of Illinois, Texas, Oklahoma and New Mexico have all lowered the documentation requirements for CGM, expanding access to the technology to more people with diabetes in those states.
Hooray!

* On a more self-promotional front, the You Can Do This Project website has a couple of noticable changes. First: you know that link list that I had to keep on this site (because Wordpress.com won't accept the link widget)? Well, it's going away soon.

I've wanted everything involving YCDT on that site for a while, and now that most of the videos have been added to that site, now seems like a good time to make the transition. This may leave you wondering, "So if there's no link list, how do I submit a new video?", which is a nice transition to my second point, so thanks for that. New videos will now be submitted through the online form on the "how to participate" page - go take a look!

* This made me laugh, and then immediately made me feel guilty for laughing.

* And now for the photo dump portion of this post:

Billy Corgin says Hi.

Nice try, Jif, but I'm not falling for it.

My first No Hitter in weeks. WEEKS. Boom!

* And lastly, be warned that things could be pretty quiet around here for a bit as I'll be spending the week in Florida - first with Sara and then at the CWD Friends For Life conference. I don't have any guest posts or anything lined up while I'm gone, nor do I know how often I'll have the ability to blog while I'm there, but if you follow me on Twitter (or like my Facebook page) I'll be updating those frequently. I plan to take many, many pictures and record a lot of video, so look out for that ahead, too.

Later, dudes!

Wednesday, June 27, 2012

YCDT Swag at FFL.

You may have seen me hinting during the earlier parts of this month that I'd secured some "giveaway" items for the You Can Do This Project table at the Friends For Life conference next month... and now I can finally talk about them!

Thank you to the extreme generosity from both individuals and companies for making these possible!

Here we go:

Each of the following two items will be won by a drawing we'll have at the exhibit hall:



And freebies to give away to conference attendees? We have those too!



I want to draw special attention to those last two items, because they are being completely paid for by the indicated parties. Brian volunteered to make these stickers happen, and I'm really excited and grateful! Hope Paige Medical could have easily and understandably turned down my lofty (and, frankly, uncomfortable for me) pitch of "Hey, you should let me design a silicone bracelet, and then make several hundred of them and ship them to me for free. Yes?", but instead they're doing exactly that, and I'm once again thankful for their generosity! (This is the same company who sponsored twelve medical ID giveaways last year to support You Can Do This.)

I'm also going to hint that I have another very cool giveaway lined up... for TCOYD! Details to come.

In the meantime, will someone jump up and down with me a bit? THIS IS SO EXCITING!!

To find out more about these kind folks, follow the linkage:

Cari's Etsy Shop: www.etsy.com/shop/CCARIA

Kewl Innovations (makers of the ClimaPak): http://www.kewlinnovations.com/

Not My Cell (Brian): notmycell.blogspot.com/

Hope Paige Medical: http://www.hopepaige.com/

Thursday, May 31, 2012

Shirts and Mugs.

I just want to throw a quick post up here to let you know (if you didn't see already) that there is now a You Can Do This Project store on Zazzle! It's pretty much just t-shirts and mugs at this point, but if you have requests for other items through Zazzle, I'm happy to take them. :)

The point of opening up a store is 1. because it helps to spread the word about You Can Do This, so of course I'm a fan of that, 2. because several people indicated that they would buy a shirt, and who am I to deny them, and more pressingly 3. because OMG printing stuff for FFL/TCOYD tables is expensive - moreso than I thought, and the proceeds from these items will hep to offset the remaining costs.



Until midnight tonight, Zazzle is also having a 50% off sale on t-shirts - so stock up! Use the code "DADSCASENTEE" (okay, they didn't create a special sale just for YCDT - it's for Father's Day, but you can still use it) to get the discount.

And in related news, I've also opened up a Zazzle store for Texting My Pancreas stuff. (You'll notice a new "buy stuff" button to your left and down a bit.) Basically, I'm throwing some of the more popular cartoon images onto mugs and shirts (well, onto shirts when I figure out how to blow the images up without them getting all weird-looking), so if you're into that sort of thing, that's where to go.

Thursday, May 24, 2012

We've Got A Booth. WE'VE GOT A BOOTH.

Remember back in February, when I was all, "Hey, wouldn't it be cool if we could get a table at Friends For Life for the You Can Do This Project"?

And then remember how, about five hours later, you guys totally blew me away with your speedy and generous donations, and we met (and then proceeded to exceed) the fundraising goal I had set?

And then (and then and then and then) I told you guys that we had a table reserved?

Well, I have good news. I must have a fairy godmother, because that table has now turned into a LEGIT BOOTH SPACE.

My heart, it soars.

As far as I can deduce, we're the only grassroots organization represented in "the hall", as I'm now referring to it. Everyone else is a registered non-profit, or a for-profit pharamceutical company, and probably has some sort of income that allows them big, cool signs and flashy give-aways.

You might be able to guess that we won't quite have that.

What we will have are passionate volunteers (some of the You Can Do This Project Advisory Team will be present, along with a few other friends in the community) willing to talk to people about what this intiative is all about, what resources they'll find through it, and how to participate, if they choose. We'll probably have some postcard-sized flyers to hand out, and maybe a couple other things. (For those wondering, the booth didn't cost extra. FFL very, very kindly offered me an "upgrade", as they had some rearranging of the hall space to do. I was happy to help.)

The money raised in February has secured the hall space for both FFL and TCOYD Des Moines, along with some of the printing costs for flyers and a sign. Somehow, I'll need to find the extra cash for things like giveaway rubber bracelets (how cool would it be for kids and adults alike with T1 to have that encouraging reminder to take home on their wrist?) and the other odds and ends that need to come together. Like, for example, a table. (Booths don't automatically come with them. Ironic, no? I was literally only paying for a table before.)

Anywho... that's the scoop at this point. I like to keep you all informed. This whole thing is aimed at getting more people and families connected to people who "get it" when it comes to life with diabetes, and it's about ALL of us supporting each other. I can't do this without you all. Thank you.

Friday, March 2, 2012

Wrap-Up.

Today's post is a smattering of randomness, reaching many places on the emotional spectrum. Let it begin!
  • You may have noticed a new purple button over on the left side of my blog this morning. My friend Meri, who writes the blog Our Diabetic Life and is the mom of four boys - three of whom have type 1 diabetes - could use your help. Her husband was recently diagnosed with metastasized melanoma, with tumors on his brain, lugs, and in his abdomen. Please send any positive thoughts, healing vibes, prayer, or whatever you're comfortable with, their way. There is also a donation page set up, should you be so inclined, which can be found by visiting the Facebook page.
  • For those who don't follow me on Twitter or Facebook, you might not know that You Can Do This officially has a table at Friends For Life (!!!!!!) - you can check out the map here to see where I'll be! Thank you, again, to all who have offered their help in making it happen. 
  • Speaking of You Can Do This, I was interviewed by CallingAllTypes.com this week. You can read the interview here.
  • Either my body just laughed off the antibiotics I took last month, or I've developed a new sinus infection. It's been a month now. I'm done being "real people sick", okay?
  • And lastly, I came across what I think might be the most beautiful analogy I've ever heard regarding what online community support for PWDs is like. It was written by Babs on a post that Scott wrote recently.
I have this picture in my mind of this wide dirt road, where each of us is walking, toward the same goal. Some are walking ahead of me, some behind. Some are running, others are taking their time. I see you further up the road than me, looking back and waving, "hey, try this side of the road, it's less bumpy up here!" I don't know what my health would be like today without your guidance.
I think it's very much like that - we're all on the same road, and we're helping each other find the less bumpy ways of traveling it.